May, 2008
Hello, my name is Sergei!
I am writing about my granddaughter. Nastya is 1 year and 9 month old now.
She doesn’t understand yet, that those whom she calls father and mother are really her grandparents.
Once Nastya saw her parents, but she doesn’t remember them.
I can’t explain their cruel indifference to their child. May be because they are children themselves.
Nastya’s parents simply left the girl in our house and went away.
We didn’t hear anything about our daughter more then a year, and we didn’t  know were she was, now she is announced in the federal research.
My wife and I claimed for deprivation of parents’ rights of Nastya’s parents, it will be held on April 28.
As we know, Nastya’s father is going to challenge his parents rights in court. God judies him…
Earlier my wife signed over guardian ship over granddaughter, because the child can’t be abandoned, somebody should lead her to the nursery, bring her to the clinics, and, moreover, just be a legal representative of her interests. But trouble never comes alone…
But trouble never comes alone…

March 24, a normal evening, we were going to sleep. Nastya refused to eat her supper, but drank a lot of water, then milk – a full stomach.
She couldn’t fall asleep for a long time because of this full stomach, began asking: “Take me out of the bed, lets go to the room!” She started crying, and suddenly a severe vomiting began. Everybody was afraid, including Nastya. Being on my arms she started breathing intermittently, then became pale, nasolabial triangle became blue, and in one moment she bent back or her body powerless by hung, we didn’t understand.
Svetlana ran to call an ambulance, I stayed with Nastya. I put heron the bed, and for some time she was unconscious and didn’t breathe. And before that jaw muscle spasm, occurs and there as an awful grin with rattles. I don’t know. If she resigned from this state herself or I helped her.
I made a couple of shallow breathings in her nose, her jaws were compressed, and I made few slow pushes on her chest.
It seemed to me, that the eternity passed by, but really just a few seconds.
By the ambulance’s arrival, there was only weakness, Nastya was almost asleep. The doctor examined her and said that such things could happen to children.
On March 28 there was the same situation, but without loss of consciousness and convulsions. The doctor didn’t find anything terrible again and promised to send a doctor the following day.
On March 29 the doctor recommended a heart survey.
On March 31 a cardiac survey was done for Nastya in the clinics, and according to the results Nastya was immediately sent to the hospital.
After several studies and surveys on the same day Nastya was sent to the resuscitation with suspeceted tromboembolism. Nuclear magnetic resonance imaging did not confirm lung embolism…
Less than in a month for the first time we hard those three terrible words – primary pulmonary hypertension.
We couldn’t believe in this diagnosis. We thought that local doctors were mistaken. Can you imagine that this cheerful child may die within 2 – 3 years!
But the diagnosis was confirmed in Moscow’s Bakulevskyi Cardiology Centre.
After the survey Nastya was playing at the playground in the yard of this centre.
Injustice of the sentence hurt our hearts. Me and my wife could not stop our tears. She is still an angel, why are you doing it, God?
After the arrival to Jaroslavl, we tried to calm, and we started studying the disease.
We found a site of a Charity fund “Natasha” and we contacted the president of the fund Evgeny Komarov. His fund had become for us a life – saving chance to save our granddaughter. We have a chance! And we must give it to our baby! Nastya should know more about this world!
The fund is negotiating with hospitals of Germany, Austria and France.
I consulted with Israel over the phone. Thanks God, no one of foreign experts says anything about transplantation. But it is necessary to make a survey. The price of this survey according to the preliminary information is 10000 euro.
Expensive drugs have already been prescribed - only one tablet of sildenafil (Viagra) costs 350 rubles! Dr. Shrants from Germany asked about parents’ opportunities in buying illoprost, the monthly rate of which is approximately 80000 rubles!
No, we do not have such an opportunity…
A bit about myself. I am 41 years old. My wife’s name is Svetlana. We are peers. We are engineers. I work in the Ice Palace of Sports, Svetlana in a trade firm.  
We are not businessmen and our salaries are not as big as in capital of Russia.
Please, take part in Nastya’s destiny and help her win!


Our fund is beginning to collect money for consultation and survey in the clinic of Gessen (Germany) for Nastenka Kanunova.
The preliminary price of the survey is about 10000 euros. (when we receive invoices from the clinics, the document will be posted on Nastenka’s page).
Let us help a small child not to know how it is dangerous when it is not enough air and the heart stops…